Done?

I went to the pharmacy at the hospital yesterday to pick up Jackson's prescriptions (only two of the three were ready and I have to go back again today, I hate that parking ramp!)  Anyway, the lady in front of me was talking to the pharmacist saying, "We're done!  He rang the bell today and we're finally done!"  I just stood there thinking, I wonder what that's like to ring a bell and be "done."  It made me remember that this life with Jackson is forever, we won't ever be "done."

The times that I've volunteered for hospital committees and to talk about my experiences as a parent with a child with special needs, I've realized that the hospital often wants to share stories with the public like the one above - This bad thing happened, we fixed him right up and sent him on his way.  All done.  Its all about the outcome. Our story is that we will be at Children's until he's ready to transition to adult care and we will have another beginning, but never be "done."  (I'm not saying that we haven't gotten great care, but there's not a whole lot of interest in saying, we've got these families that have been coming here sometimes a few times a month for 18 years and there's no "done" in sight.  That doesn't sell a lot of papers, if ya know what I mean.)

I wouldn't change things (maybe I would to make life easier for Jackson, but not for myself), but it's been a long 11 years with no "done" in sight.  And all told, he's still a pretty cool kid.

Object du Jour:  The box from the Minecraft Lego set.  The box is way more fun than the actual Legos.

Song du Jour:  A new feature here on J's blog.  He falls in love with a song and we listen to it until I can't take it anymore and he moves on two a new one.  Right now it's "Jungle Love" by the Steve Miller Band.

#endscene